Do You Take Idebenone?

November 7, 2017

News from the UMDF (United Mitochondrial Disease Foundation)


Learn more about the effects of Idebenone/Raxone in Leber's Hereditary Optic Neuropathy (LHON). A mitochondrial disease that causes vision loss, closely related to ADOA.


Update from Santhera Pharmaceuticals - LHON/LEROS


Thursday, November 16, 2017
Noon East - 9AM West

Learn the latest from Santhera Pharmacueticals about  their LHON Development Program and the LEROS clinical trial for patients with LHON.
Join UMDF's Scientific and Alliance Officer, Phil Yeske, Ph.D. and Lissa Poincenot, UMDF's LHON Ambassador, as they moderate this informative discussion.   

Santhera's Medical Affairs Director, Xavier Lloria, M.D., will present information about Santhera's LHON Development Program.  Diana Petraki, Santhera's Clinical Trial Leader, will provide you with information about the LEROS Trial.

To participate, click here.  If you are new to Webex, please allow time (about 5 minutes) for your computer to download the files you will need to participate.

If you have a question that you would like asked and answered, please click here and email it to us no later than 5PM East on Wednesday, November 15, 2017

We hope you can join us!

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