Could Facebook Founders Fund Our Research? A Look at the Chan Zuckerberg Initiative.



At the Autosomal Dominant Optic Atrophy Association (ADOAA), we are focused on putting your money to work to fund research for a treatment or cure for ADOA. To that end, we’re excited to announce that we recently submitted our application for the second funding cycle of the Chan Zuckerberg Initiative (CZI)’s Rare As One Network.


Launched in 2019, the Rare As One Network funds three-year grants to support rare disease advocacy organizations in the “development and/or expansion of a patient-led collaborative research network in their disease area.” In their second round of funding for this program, CZI is providing 20 awardees with up to $600,000, as well as training, community learning opportunities, and mentorship. CZI is unique in that they actively partner with their grantees and offer invaluable programs to build skills in key areas from operations to conference planning to community building.


In a Medium post discussing the rollout of their second funding cycle, CZI explained that they are encouraging applications for projects focused on overcoming diagnosis-related research challenges. Our application outlined a three-year plan to expand research for ADOA thus hoping to get closer to finding a cure for it’s many debilitating symptoms. We submitted a very strong application, and we are looking forward to the upcoming announcement of the Rare As One Network Cycle 2 finalists.


You can learn more about the 30 previous grantees in the Rare As One Network by clicking here. With the help of CZI, these organizations are making incredible progress for rare disease research in their respective areas.


The awards for the Rare As One Network Cycle 2 finalists will be announced in October. Do you want to hear more about our Rare As One Network Cycle 2 application? Or do you know of other upcoming funding opportunities that ADOAA may be eligible for? Don’t hesitate to reach out to us by filling out the Contact Us form at the bottom of our website. And be sure to also follow us on Facebook for tips and frequent updates.