October 3, 2019

Thinking about the future can be nerve-racking for someone living with a disability.
Especially for those living with vision impairments, learning new skills and gaining
an education can take longer and require more tools and more money than the
average student. Thrivi...

August 23, 2019

After Americans come together to celebrate Independence Day and reflect on what July 4th means for our country as a whole, it’s also important to take a step back and think about that word: independence. For many it means freedom – to choose what you want to do with yo...

July 3, 2019

One of the most difficult things about living with a rare disease is feeling as though you are defined by your disability. It can seep into every aspect of your life: from getting special treatment at school or work, to not being able to easily get around on your own....

June 6, 2019

Living with vision loss can often make one feel isolated and lonely. At the ADOAA (Autosomal Dominant Optic Atrophy Association), however, we’re working to build a community to combat this feeling. When a disease is considered rare, and doesn’t have a treatment or a cu...

May 2, 2019

*Image from LVS

As someone living with Autosomal Dominant Optic Atrophy (ADOA) or taking care of a family member with ADOA, you know how difficult it can be to get information about rare diseases and potential treatments. Luckily, there are companies and organizations w...

March 20, 2019

Spring is in the air across the United States, and with the changing seasons comes a classic family activity: spring-cleaning. Marie Kondo may have taught you how to master your closet, but what about what you’re putting in your body? While there has not yet been a cur...

February 28, 2019

Today, on Rare Disease Day, advocates across the world are working to bring awareness to the rare diseases that affect the important people in their lives. One of those diseases is Autosomal Dominant Optic Atrophy (ADOA). This disease touches everyone in the ADOA commu...

January 14, 2019

By now, you’ve probably started down the path of conquering your New Year’s
resolution. Every year we do the same thing: making resolutions that help us
improve ourselves. Maybe you want to lose weight, read more books, or get a higher
paying job.

The list could go on a...

August 13, 2018

In just over a month, the Autosomal Dominant Optic Atrophy Association (ADOAA) will be partnering with the Delta Gamma sorority to host a virtual 5K (3.1 miles) to help fund medical research for the treatment and cure of ADOA. We encourage everyone to participate, espe...

June 21, 2018

ADOAA (Autosomal Dominant Optic Atrophy Association) is excited to announce a new partnership with the Cure ADOA Foundation, an organization recently formed in the Netherlands.

The founder of the Cure ADOA Foundation, Dorien Blankenburgh, has an extremely personal relat...